16. On the Sixth, Seventh and Eighth Days of Christmas…

6th-day-of-xmas…I woke up, went to get out of bed and felt a tug; I managed to catch it before it fell on the floor. Fortunately being 5ft 1″ with 80cm tubing attached at the waist meant even if it had fallen on the floor, it shouldn’t have ripped my cannula out. However that instinct to protect the little box on the end of the tube is necessary, any little crack can cause havoc now that I rely on this as my lifeline and an issue on day 2 (my first full day) of pumping would be very unfortunate.

I had the best sleep I’d had since Thursday and I was both surprised and incredibly grateful for it. I felt a sense of calm that I’d been longing to feel although it was mixed in with a small element of panic; perhaps only natural to feel this way when you’re a fembot?!  Another new experience planned for today, first burrito and meeting more of Matt’s friends. As a slightly different start to my day, the first thing I did this morning wasn’t to check my phone, so imagine how incredible it felt, for someone who’s been somewhat isolated in her diabetes journey, to see a text from my man, with a link to burrito carb info.   I’d hoped I’d be able to work out the carb info as we ordered the food so I could pre bolus before we took the food to D & G’s house; I had a tiny anxiety about doing this in front of people I’d never met before, especially when you’re trying to make a good impression; but it was all good. D & G are incredibly welcoming people and not a single one of Matt’s friends have been anything other than supportive – I think Matt got more good luck texts to pass on to me on pumpstart day than I got directly to my phone – so I shouldn’t have expected anything different I suppose.

I had a massive spike after the food, which I corrected for although I did experience a few persistent hypos’ later on in the evening. The degludec clearly hasn’t yet left my system. Thank God for temp basals – they were my saviour at this point in my pumpstart journey. It was also great to hear from my pump buddy Kate this morning, we talked about how people at work would probably ask her what her pump was, my suggestions for responses are as follows;

 “it’s so the FBI know where I am” or “they won’t let me out without it” or “it helps me adjust to earths atmosphere”.

What amusing responses have you given to questions about your pump?

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Another epic sleep and another 6am start. 7th-day-of-xmasThis pump malarky isn’t a friend to my lie ins, but that’s OK; today is set change day – my first time without supervision. Because I woke up with a high BG I just had some tea for breakfast, whilst I sipped my cuppa and waited for the correction bolus to kick in I read through the medtronic quick start booklet to remind myself of the steps needed for a successful set change.

Again, I had my pump buddy’s support and she mine. We discussed the best time of day to do it to fit in with our schedules, whilst bearing in mind that immediately before bed isn’t a sensible option. I had an “original blonde” moment here, I can laugh at it now and I’ll hope you’ll join me. So, because I needed to keep giving correction boluses, I had in my mind that I couldn’t do a set change for 4 hours after a correction. DOH!! So because of my daftness my planned morning set change turned into a mid afternoon set change. Fortunately, it went off without a hitch. I think the toughest part was selecting where to place the new site, but knowing that I could change it again on Friday meant I wasn’t too panicked if it wasn’t the easiest site.

A few more hypos today, but I’ve started to spot them coming more and use a temporary basal rate to try and avoid them. I’ve become accustomed to having some crackers instead of hitting the haribo. Because our brains don’t know we have Diabetes, the way I maintain my hypo symptoms is to always treat with fast acting glucose at 4.2 or below, that way my body will crave glucose and hopefully I won’t compromise my hypo awareness. If I’m above that level then I’ll usually try to bring my next meal forward or have some non fast acting carbs (I LOVE Munchy Seeds Honey seeds – also my bedtime snack of choice if I’m below bedtime target), and include a negative correction when I bolus. It’s all so much easier on the pump because the bolus wizard does that calculation for you. I was worried that using the pump would alter my hypo and hyper symptoms, not the case at all and the beauty of the pump is that I seem to have more control over avoiding hypo’s altogether because I can reduce insulin if I need to. I’m more invested in proactively managing my Diabetes more, it’s an empowering change to reactively managing it.

I also saw my GP today to go through the prescriptions I’d need now, I was asked if the pen cartridges and needles etc could be removed from my repeats now;

**If you’re starting Insulin Pump Therapy you will still need to carry your fast acting insulin around with you in case of high BG’s, a failed set or an issue with your pump. PLEASE DO NOT LET YOUR GP REMOVE THESE FROM YOUR REPEAT PRESCRIPTION.**

Repeats sorted, I then talked my GP through how my pump works. I appreciate that my GP is honest with me when something related to my Diabetes is beyond the scope of his knowledge, but I’m even more grateful that he takes the opportunity to learn. I know there will come a time when I need to change my GP, and I will honestly miss the way we work together to manage my health. If the staff at your GP practice don’t know much about your pump or the way you manage your Diabetes, why not offer to give them a talk; if nothing else it will help you realise how much you actually know.
(I’m in no way suggesting this should replace formal education for Drs and nurses, but it can assist them in learning about patient care and how diabetes varies so widely).

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8th-day-of-xmasToday I’m feeling brave….and or foolish! Time for Christmas shopping!! Having chatted to Brian a lot, I took into account that I’d be a lot more physically active and no doubt super stressed with all the slow moving people spending their money and struggling to move under the weight of their shopping. I put on a temporary basal of a 30% reduction for 12 hours, I also took the train – it allowed a few moments of relaxation before I became a short woman amongst a sea of shoppers.

I’ll admit to feeling a pang of nerves about the crowds of people, what if someone hit my pump or if I got it caught on something and ripped the cannula out…I put those thoughts to the back of my mind and vowed to just avoid getting too close to people. Once I got into town the first stop ended up being the M&S cafe, I needed to treat a low and I also needed to make a list of who I was buying presents for…I could feel the stress bubbling already.

After traipsing around for a few hours, salvation in the form of my best friend S arrived! This was the first time I’d seen her since becoming a fembot and I was excited to share this with her, it also meant sitting down and drinking coffee (or tea in my case). The first thing I did was show S how, having my pump clipped to the middle of my bra; I could look like Iron Man, as a DC and Marvel fan that was so amusing to her. Once we got over the superhero discussions, I showed S my cannula site and talked her through how the pump works. It was interesting that she’d assumed I would have a permanent ‘port’ to attach the pump to, which I guess comes from our friend who has dialysis. It made me realise how misunderstood Insulin Pump Therapy still is, maybe not even just amongst the Type Zero’s. It also made me realise how much I’ve learned in the last few days, so I gave myself a little credit and mentally gave myself a pat on the back….my shoulder impingement means I can’t quite reach.

 

Thank You!

Nx

 

All images are copyright Discombobulated Diabetic and Google Images.

 

15. On the Fifth Day of Christmas….

…A change happened….

At just after 5am I woke up on the sofa to a gentle nudge from Matt, it was time to get up and ready if we were to leave by 6am. We had decided to drive to Westfield and catch the Tube from there (rather than Wombling Free), travel planning now being an important aspect of hospital appointments since moving my care to London. I can’t say it enough, had Matt not been there I suspect I may have lost my mind; whilst I got washed and dressed, he took over making tea and toasting crumpets (only 1 oven glove and 2 crumpets were burned in the making of this breakfast). En route, I checked my BG, it had shot upto 21 which I suspect was due to the emotions and the reduced basal dose that I’d given over the last few days. It was here in the passenger seat of Matt’s car, crawling in traffic on the M40 that I took my last regular injection.


Despite the traffic as we approached Westfield, we arrived only 5 or 10 minutes later than planned, so the next mission was to find the Wood Lane Tube station. As we left the warmth of the shopping centre car park and marched off into the cold day towards the Tube, a combination of wanting to make up time, anxiety and the near freezing air saw me struggle to catch my breath. We stopped and I realised I was having a panic attack. As he would do at so many points this day with the squeeze of my hand or a giant bear hug, my incredible guy held me close and reassured me that I needn’t worry. In the safety of those arms I found the calm I had momentarily lost, I was excited again, still nervous but not panicking. Next stop Hammersmith!

As we got to Charing Cross Hospital, I told Matt about it being where Anna was treated and how we’d talked about me visiting her back in August when she was in for her last operation, she was excited at the prospect of us both being at the same hospital for the care that we needed, and we were both excited at the prospect of being reunited. When I came for my first appointment, I admit I was concerned that there would be many emotions about the plans Anna and I had tentatively put in place, I feared I would feel utter sadness. Instead it felt like she was there with me – it was comforting and reassuring; I felt like I was in the right place. I felt that again today, especially as Matt held my hand as we found our way up to the training room.

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View from the Training Room – Could be worse!

We walked into the room and it is here that we met Kate who would also be starting pump therapy today. Naturally you could feel there were some nerves in the air as we waited for our DSN, but once we got chatting they soon dissipated….for a moment at least. Our DSN joined us and, very importantly….offered us tea or coffee. Anyone who knows me will know that tea is my go to hydration method, having not had a cup since about 5.30am it’s fair to say I was gasping for a brew.

Teas in hand and introductions made, our DSN explained that we would be with her till about 1pm and the rep from Medtronic would be joining us shortly. We began with writing down our usual daily insulin intake. I doubt I’m alone in always struggling with this question, in part because it depends what I eat, but also if I eat and above all; how many units I need for my morning correction dose. In this instance, I was able to use the data on my Libre from the last few days to work out my most likely mealtime insulin doses.
If you’re about to start Insulin Pump Therapy, make sure to record all your data in the run up. I log carbs and insulin doses on my Libre monitor, but there are some excellent apps available that will enable you to record everything: My Sugr, is a popular app that many of my pals from the GBDOC use. 
Your DSN (or whoever is teaching you on the day you start IPT) will need this information to calculate how much insulin to start you off on…

Once the numbers were handed over Kate and I had some paperwork to fill out. I’ve gotta hand it to my fella, he started going through the instruction manuals and paid close attention to what was going on. I didn’t expect anything less, but to have him there actively participating was the best feeling ever; even more so as I was exhausted from 4 nights of restless (read: barely any) sleep and needed a backup brain. img_6723Next up we started by opening the box containing the device that would be keeping us alive from now on. I felt like a kid at Christmas, or a visitor to a trade fair – merch central, although this is so much more than a handy spare pen!  Once out of the box, we went through the process of starting our new Insulin Delivery System up. As I was pressing the keys and selecting the relevant menus, Matt was at the relevant page in the manual and we worked through it together. He also did a pretty awesome job of helping Kate if she needed it by sharing the info he’d read, or what he’d seen me do.

We took a little break whilst more tea was made and upon our return it was time to really make a start on pumping. We first made sure all the settings we would individually need were in the pump, both the DSN and Medtronic rep were so helpful and knowledgeable at answering any questions and explaining the reasons for the settings we were entering, the tips they shared were also an incredible help.Then it was onto the active learning part of the day, drawing up insulin into a reservoir, connecting this to an infusion set, locking the insulin cartridge in place in the pump and then……inserting the infusion set into ourselves!!
All this seemed quite straightforward and the instructions provided in the kit are easy enough to follow. The chap from Medtronic mentioned many videos online that could help with this process too; it all meant the thought of doing this at home unsupervised wasn’t as daunting as I’d expected it to be, in addition Kate and I had decided to stay in touch and become #PumpBuddies. Once the sets were in, the final step was to test our blood glucose with the new Contour Next Link meter that from now on, would send our BG results to our pumps. We watched as the meter told us our BG levels, and then marvelled as the screen on our pumps sprang to life and told us what our Blood Glucose was. I needed a correction dose, no surprise there given the reduced basal and emotions. So I used the bolus wizard on my lovely new Medtronic Minimed 640G which Matt had so lovingly applied the pump skin to, I entered that I wasn’t having any carbs and went through the steps to confirm how much insulin this bionic addition to my body should give me. As soon as my pump beeped with the bolus complete sound, I felt a rush of emotion…..I cried. I was connected. I’ve so much hope tied up in my as yet unnamed pump; I was truly overwhelmed and grateful to finally be receiving a treatment that has the capacity to help me live better with my Diabetes than I ever have.

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We were nearly done with our pump training and inception, the last task before being sent out into the wild as fembots was to go and have a snack and bolus for it. Matt & I were going for a little lunch date before we headed home, so we went to Costa and I decided a Black Forest Hot Chocolate would be a good test. Fortunately Costa has nutritional info online, which includes carb content; to be honest it’s not particularly mobile friendly but it’s better than guesstimating from thin air. img_6677Once I’d found the carb amount, I took a fingerprick test, waited for it to connect with my pump which I had stowed away in my pocket at this point. Gingerly taking the pump out of my pocket, I was excited to use the bolus wizard for actual carbs. Again I went through the steps: entered the carbs in my drink, observed how the wizard accounted for my current BG, active insulin and the carbs I was about to consume. I then enjoyed this festive treat with the knowledge that as long as my ratios are correct, this was going to be a hassle free Black Forest Hot Chocolate (and for those of you who’re aware of my love for Black Forest Gateaux, yes I would have the drink with the cake).
So with the first tentative fembot steps seemingly successful, Matt and I headed back up to the training room. I had decided to move my pump to my bra, clipping it in the middle (I’m trying to be delicate about this) and I showed Kate as we’d discussed it as an option before we went for our snack and bolus, I’d not been keen at that point. Matt’s face as I pulled my top down enough to show Kate was a picture. Always a moment for something to giggle at in Niki’s world.

Before we could leave Kate and I had a little bit more paperwork to fill out to set up our medtronic accounts, this would be how we order our pump supplies, then we got a list of the things we’d need to add to our prescription with our GP. Our DSN asked us to send over our results each day, there would be some fine tuning to do in order to get the basal patterns right but she would be with us every step of the way. With those reassuring words, my #PumpBuddy and I; accompanied by the increasingly amazing man that is my boyfriend, waited for an hour for a lift to leave the hospital (It wasn’t really an hour, but it could’ve been quicker to get anywhere on the Piccadilly Line that day). We all walked back to Hammersmith station where Matt and I said bye to Kate. I’m so grateful to have her as my #PumpBuddy, as much as I have an abundance of support the like of which I’ve not really had with my Diabetes journey before to literally, step for step be on a parallel journey like this with someone; is the finest form of peer support.

Back at Westfield, we went for our lunch date to Wagamama, thankfully the nutrition info online is not only mobile friendly but it’s so clear and easy to find!! I wish it was this easy in all restaurants! There are some excellent resources online for working out carb content whether eating out or cooking yourself, so even if a restaurant doesn’t have a menu with detailed nutritional info, a more accurate guesstimate is only a Google (other search engines are available) away.

Lunch date over, we headed home. Sated by the delicious food, exhausted by the excitement of the day and for me at least, a little nervous for my first night as a pumper.

Home at last, a snooze and a hug later and Matt had to go to work. I was alone….as a fembot….Eeek!!

Later on in the evening, I was exhausted and struggling with a persistent hypo. Having some quality time with my Haribo collection wasn’t what I wanted to be doing, I had insulin on board and a basal dripping into me and I panicked, forgetting the advice I’d been given earlier in the day. So I messaged my Diabuddy Brian who began pumping a few weeks before me. I knew he’d be able to advise and I wanted to touch base with him anyway, in addition to being a valued friend Brian has also been on my cheerleading team in the run up to pumping. Bri reminded me of temp basals, but as I was planning to go for a bath, for which I’d just disconnect the pump, he reassured me that that’d help my hypo treatments take effect. It worked, Thanks Again Bri!! I reflected on why my BG had dipped so persistently, and concluded that I probably still had Degludec on board. But at least now I’d know what to do if it happens again.

Bedtime….I fell asleep, pump next to me in bed…..hopeful it’d still be attached in the morning! Today will be cherished for so many reasons, the day feels like a gift from somewhere I can’t even imagine.

Thank You!!

Nx

 

 

 

All Images copyright Discombobulated Diabetic.

14. On the Fourth Day of Christmas….

….I concluded that I am beginning anew and it’s OK to be nervous as heck…..

Literally tomorrow will take me to the beginning of a new path of my Diabetes journey. It’ll be a beginning that perhaps should have happened a long time ago, I suspect at least a decade ago would have been appropriate. Whilst I “fell through some gaps” in terms of care and education etc, as previously mentioned I am suspicious that I’ve been in denial of what my Diabetes means for me for the last 15 years and this has meant I’ve accepted things that I should’ve been questioning. This is undoubtedly off the back of my diagnosis experience, and the undeniably British “Keep Calm & Carry On” attitude I adopted; none of  the people around me seemed to make a fuss when I was diagnosed, so why should I? It’s true that “it is what it is”, but sometimes not making a little fuss could perhaps be detrimental to some? What was your mentality/attitude to it when you were diagnosed? On reflection, despite being someone who doesn’t enjoy a lot of unwarranted fuss; some fuss would have helped me question things and fully grasp the magnitude of my diagnosis. So peeps, ask for a little fuss/support/education/answers/hugs if you need it. That applies at any point during your life with Diabetes.

I feel incredibly apprehensive about tomorrow, I’ve been reassured by my amazing Diabuddies (and the just buddies), that it would be unusual if I wasn’t. I think for me, the apprehension, even anxiety I feel is a sign of how important this is to me. I’m about to experience a completely different version of my Diabetes than I knew existed, and as much as I want that change and improvement; there will always be a fear of the unknown, even when the unknown is set to be simply wonderful. I’ve had moments today of feeling a genuine fear, I’ve counteracted them with bringing myself back into the Here and Now which has been easier to do with our Festive Sunday plans and Matt being so wonderfully supportive.

Right now, the day before Pump start, I keep telling myself that every thought and emotion I’m experiencing is proportionate to what’s coming. It’s OK to feel nervous and excited and hopeful and afraid all at the same time.

Before I attempt any sleep tonight, there’s a little bit of prep I need to do; usual admin of travel planning aside, I also need to:
* Give a further reduced dose of Tresiba
* Sift through the items in my kit and suitably store the items I will no longer be using
* Review all Libre data to identify trends in my BGs, the specific issues I want the pump to     help resolve and assess where my comfortable “steady” BG spot is.
* Make sure I have details of the ratios I use
* Select an outfit that I can comfortably wear a pump and tubing with (Jeans, vest top and button down shirt)
* Restock hypo supplies in handbag
* Mentally prepare yourself for not taking basal in the morning
* Mentally prepare yourself that before lunchtime tomorrow, you will have taken your last regular injection
* Read through all the amazing words of advice and encouragement from Diabuddies and JustDiabuddies
* Relax and do some Reiki.

It’s a big day tomorrow, I can’t wait….

Nx

All images are copyright Discombobulated Diabetic and Google Images.

 

 

 

13. On the Third Day of Christmas…

…I reflected and put the tree up….

After another night of not much sleep, I had to choose whether to play snooze catch up or try to have a productive day. I chose productive, not least because it would help the time till Matt gets back go quicker; we’ve a super festive Sunday planned and I can’t wait, (I may have purchased a selfie stick !!). I spent longer (and more money) mooching around a local town than I’d intended, exceeding the 2 hours free parking and being OK with paying for 3-4 hours. I brought some gifts and a Christmas Stocking each for Matt and I, I got us both an advent calendar.  Then I took great pleasure in putting my tree up and adorning it with the new decorations I’d brought. I can’t wait to Xmas Bomb Matt’s place now – especially considering it’s where I’ll be waking up on Christmas Day…

Before heading out though, the usual morning routine ensues; check BGs which shows I need to take a correction dose alongside my reduced basal, as I get my pen out of my kit I notice the vial of Novorapid is half full and it dawns on me that I may not finish it before Monday. I then also start to consider the difference of using a IPT vs MDI, it’s not that I haven’t considered this before, but it wasn’t a prospect that was literally around the corner. MDI has been my routine, my comfort zone and lifeline for 15 years, alongside Diabetes it has been my longest relationshipIt hasn’t been all bad and I maintain that if I could achieve the control, that yearned for “steady line” with injections, I probably wouldn’t be pursuing a pump at this point. The fact that it would mean upwards of 15 injections at different times of the day and night not being a prospect that phases me, the fact that it would mean piercing my skin at least 30 times a day (fingerpicks and injections) however, is a different story.

As I picked up my metallic red Novopen, removed the lid (Yes Amber, I still keep the lid on), and screwed on my 5mm 32g Novotwist pen needle; the realisation that I have done this for 15 years without question or reluctance (well maybe minimal reluctance, ok let’s just say some reluctance then…happy?), gave me mixed feelings about the change. I am excited and apprehensive at the effectiveness of the only daily skin piercing being fingerpicks. Recently a fellow PWD starting pump therapy told me she’d had to hide her pens, having been injecting for 29 years she was concerned that the “habit would be hard to break”, I fear I may be the same. Another conversation recently revealed that people with Diabetes all, essentially have OCD. It makes perfect sense, the carb counting, the maths of carbs to insulin ratios, the finger we prick when checking BG levels, the places we prefer as injection sites…..and the autopilot BG/Injection routine that occurs with regularity throughout the day; every day!

I have an autopilot routine with returning home,Little P & The Kit  I remove my kit from my bag, and place it in the spot by the kettle next to my sharps bin, it’s where my kit has always lived when I’m “in residence”, just like the flag flies when the Queen is home. What will I do now, it would be dangerous to get the kit out in the same way…I may inject and cause hypo’s, but I can’t just come in and fling my pump on the side by the kettle….that’s hurt ALOT!! (I imagine ripping out a cannula would be pretty uncomfortable). At this point, I realise there are going to be more changes to the way I manage my Diabetes than just the treatment for my Diabetes. Perhaps it does mean repurposing my beloved “kit bag” after all…which will stump the beautifully curios Little P! 

One thing I am looking forward to, is the ability to suspend insulin when I have a hypo, today brought with it a couple of persistent hypos. You know the kind, where you treat and 15 minutes later you’re still dropping because you have insulin on board and you’ve been more active than you’d anticipated?! Don’t get me wrong, who doesn’t enjoy a mini bag of Haribo every now and then, but when it’s as a medicine, it takes the fun out of it a little.

So today has definitely yielded a less panicky emotional response to Monday’s rapid approach, it’ll be interesting to look back at this in a few days and reflect again…

Nx

Images copyright Discombobulated Diabetic & courtesy of Google Images

12. On the Second Day of Christmas….

….I had a little panic…
…I will have an Insulin Pump by the time my little sister celebrates her time of birth on Monday 5th December 2016 (this isn’t a “thing” by the way. Because she was born at 11pm or thereabouts, we do let her have the whole day). It seems to have happened so quickly, which unlike my sister’s 34th  *ahem* 21st birthday, has been unexpected, but equally worthy of celebration.

I don’t think I slept much on Thursday night, controlled by a feeling of “there’s not enough time to do everything”; questions running through my head at such volume and speed it was too hard to slow the thoughts enough to write them all down. For some bizarre reason, (possibly sleep deprived in motivation), I kept telling Matt I felt like I needed a “Last Hurrah”…….how daft is that! Instead we had a lovely breakfast, cooking for this wonderful man has meant my eating has been less disordered when I’ve been with him – just need to get some consistency to it now. We also took Ruby for a lovely wintery walk, watching her overshoot the ball landing and roll repeatedly was especially fun when piles of golden leaves were involved. We laughed and chatted, surprisingly not really about the pump start; I needed that distraction.

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The Boyf then headed off on his annual Xmas tour to Bournemouth, and my mind headed off on some kind of Pump related vision quest around Ikea…where would I store my pump supplies? My medicine drawer wouldn’t be big enough, I don’t have a spare cupboard…..and on it went until I considered turning my cloakroom into a private pharmacy. At this point I should have gone to sleep but I chose to ask my Diabuddies in the GBDoc where they store theirs. This helped me to calm down a little and realise that I don’t need to build an illegal extension to my flat, besides I could do with a clear out, I’ve far too many lancets….

 

 

Later on in the day I collected my prescriptions from the local sorting office; which I’d ordered for the first time via pharmacy2u, the inconvenience of making a minimum of 3 trips to fill my regular medications had become infuriating to say the least. I did so thinking I wouldn’t need half of it, which wasn’t the case a few days ago when I placed the order. I specifically wondered about the Tresiba. I’d need to keep pen cartridges and needles handy, still carrying them with me everywhere I go incase of pump failures, kinked cannulas or running out of insulin. In those situations, surely it would be more sensible to use Levermir or Lantus if I needed to inject a basal in the future? I instantly thought of those who don’t have the access to insulin that I do, so once Monday’s activities are complete, I will be looking up how to donate some of my supplies. If anyone knows or has suggestions, please get in touch with me.

On top of all of that somewhat irrational concern given the bigger picture, I had some pre pump start questions for my DSN. It’s great to be able to email her and know that she’ll reply within a couple of days, if not the same day. My query was about reducing my basal dose prior to Monday. As mentioned above I take Tresiba which is a flat background insulin, with a profile of 36 – 48 hours, Lantus is 24 hours and Levermir is a 12 hour profile. Once I start pump therapy, I will only take 1 type of insulin which will serve as both basal and bolus. If I have too much insulin in my system when I begin IPT, I could end up having hypos; hence the need to reduce my basal. So as standard, I was initially told to reduce my evening background injection by 50% on the Sunday night and omit it completely on Monday morning. This only applies for Levermir (which is spilt and taken 12 hours apart) or Lantus (which can also be split), I suspected I would need to begin reducing the Tresiba on Friday at least but wanted to confirm with my DSN. The reply came and I was grateful for her honesty and reassurance;

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I also asked the online PWD community, and as ever, they reminded me why I shouldn’t panic about the switch to Insulin Pump Therapy. I have my DSN on email and outside of “office hours”, I have thousands of years of experience, knowledge and expertise at my disposal.

….I’m less panicky now.

Nx

Images copyright Discombobulated Diabetic & courtesy of Google Images

11. “On the First day of Christmas….

…as I cleaned my new love’s kitchen,
the ping of an email did chime…

…I picked up my phone and I watched as it delivered,
a message from my DSN…

…Greetings young Niki I hope this finds you well? I’ve something for your festive diary…

…On the fifth day of Christmas the NHS will give to you……….
* An early start
* Some anxiety
* Raised BeeeeeGeeeeeee‘s
4 hours of learning, some maths and percentages……and a Medtronic 640g!!!”

(#EARWORM)

That’s right folks, after months of observations, data collating, a change of Diabetes team and probably a metric tonne of insulin; the wait is over, I start Insulin Pump Therapy on Monday 5th December.
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I only found out this morning, I’m nervous and I’m excited.

Someone asked me why I pursued this treatment and if it meant that it would mean I’d have to do less. Well first up, I didn’t pursue this because I thought it would mean “less work” with my Diabetes, I went into this pursuing the best treatment for my Diabetes; which turns out to be an insulin pump due to overnight hypos with no awareness, fear of exercise (due to having hypos) and the much maligned Dawn Phenomenon (collectively referred to by a friend as; “Niki’s weird brand of D”). It all meant my #LibreArt would often resemble steps, mountain ranges, rollercoasters or the lines on the monitors you see in Casualty…. All of which means I do not feel well on an almost daily basis, yet I foolishly accepted this as my fate.

I’ve felt overwhelmed a couple of times today, but my spectacular boyfriend has reassured me, my best friend has reminded me of my desire to live well with Diabetes after 15 years of not really doing so (despite what I thought – sneaky Diabetes), and the fact that, unlike when I first began this journey with the advice and guidance of Melissa from Input; I am not alone anymore, makes me appreciate the timing for everything in life –  I do suspect Anna and some of my other exquisite Angels have played a part in that.

As I catch a ridiculously early train into London on Monday morning, Matt will be by my side despite having to work a night shift on Monday, because he wants to learn about my Diabetes, he wants to support me and care for me when I need it. I’ve not had someone walk so steadfastly by my side with this before. I in no way dismiss the support of my exquisite humans – Bestie Sarah in particular, but this feels different, Sarah rarely holds my hand unless we’re pretending to be young girls skipping with carefree joy!

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The Boyf…. (?)

It’s literally been “all change” as far as my life with Diabetes is concerned this year, and it’s all brought me to this place…..

I wouldn’t know about the GBDOC or DOC without Diabetes.
I wouldn’t know about the excellent work of Input, Diabetes UK, Team BG, Ocdem or Imperial without Diabetes.
I wouldn’t have made some treasured friends – with and without diabetes, without Diabetes.
I wouldn’t have discovered a love for peer support that I’d like to turn into a career without Diabetes.
I wouldn’t have learned that I can live well with Diabetes, without Diabetes.
I literally wouldn’t have met Matt, without Diabetes!!

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Silly Ridiculously Smiley People…

I’ll aim to post more about my pump journey as I go on, I’m sure I’ll be asking for advice and needing the wisdom and support of my amazing friends from the Diabetes Community.

Now……to name it or not to name it????

Nx

 

 

Images copyright Discombobulated Diabetic & courtesy of Google Images